All posts tagged karen hitchcock

  • The Weekend Australian Magazine story: ‘Dying Wish: In-home palliative care nursing’, February 2017

    A feature story for The Weekend Australian Magazine, published in the February 11 2017 issue. Excerpt below.

    Dying Wish

    Few terminally ill Australians get to spend their final days at home. When it happens, it can be the greatest gift of love.

    The Weekend Australian Magazine story: 'Dying Wish: In-home Palliative Care Nursing' by Andrew McMillen, February 2017. Photo by Justine Walpole

    It begins with the lighting of a candle, the bright tone of a ­ringing bell, and a card plucked from a deck of Buddhist prayer cards then read aloud: “Now may every living thing, young or old, weak or strong, ­living near or far, known or unknown, living or departed, or yet unborn – may every living thing be full of bliss.”

    On this Monday morning in a northern suburb of Brisbane, six clinical nurses and support staff are gathered around a table inside a building known as Karuna House. Its walls are painted pale blue, its ceilings are high, and pinned to a corkboard are dozens of booklets gathered from funerals and memorial services. These are some of the organisation’s recently deceased clients, for the nature of Karuna’s work is to offer support to ­people who are terminally ill, providing in-home palliative care services to about 50 families at a time. ­Written in red on a whiteboard is the number four – the tally of clients who died the previous week in mid-November; the same as the week before.

    In a corner of the room beside an open ­window sits Camille Doyle, 40, who listens intently while making handwritten notes on a printed page that shows her clients’ names, addresses and current assessment: “stable”, “unstable”, “deteriorating”, or “terminal”. This fourth stage is followed by bereavement, which involves caring for those left behind. Today Camille will visit four homes; by now, she knows these people ­intimately and the routes to their houses so well that she doesn’t need a map.

    On a bushy block in Samford Valley, 25km north-west of Brisbane CBD, sits a large timber house owned by a married couple of 49 years. When Camille knocks on the door at 11.30am, she is greeted by Sandra Huelsmann, a 73-year-old grandmother who wears pearl earrings and a ­silver heart necklace. “Hello, Millie,” says Sandra, smiling. They hug, and Sandra welcomes the nurse into a home she has visited regularly for the past six months, an unusually long relationship for Karuna. The longer duration reflects the complex nature of this particular palliative situation.

    On an adjustable bed in a room towards the front of the house is Tony Huelsmann, a retired dancer, choreographer and dance instructor whose skills were once in high demand at schools throughout Melbourne and Brisbane. Sandra was one of his dance students. He was 30 when they met, seven years older than her, and it was love at first sight.

    Born in Germany, Tony has spent much of his life in Australia. Now 80, he is dying from complications associated with several internal and ­external cancers, including a rash of angry red squamous cell carcinomas that have colonised the skin of his swollen upper thighs. These painful sores require daily dressings, performed by a personal care worker, while Karuna’s rotating ­roster of nurses help with symptom management, bed-baths, toileting and bedding changes, as well as emotional support for both husband and wife.

    Since May, Tony’s world-spanning life has been confined more or less to these four walls while Sandra cares for his every need. At night, she snatches sleep where possible. It is their wish for Tony to die at home and they are both determined to see this wish fulfilled.

    To read the full story, visit The Australian. Above photo credit: Justine Walpole.

  • The Weekend Australian book reviews, December 2015

    I reviewed a handful of books for The Weekend Australian in 2015. Most of them were very good, but my review of the book I enjoyed most – published in November – is included in full below.

    The Truth: An Uncomfortable Book About Relationships by Neil Strauss

    'The Truth: An Uncomfortable Book About Relationships' book cover by Neil Strauss, reviewed in The Australian by Andrew McMillen, 2015In the opening pages of Neil Strauss’s 2007 book The Rules Of The Game, the dedication reads: “To your mother and father. Feel free to blame them for everything that’s wrong with you, but don’t forget to give them credit for everything that’s right.”

    Eight years later, Strauss — an American author who came to prominence as a journalist for Rolling Stone and The New York Times — has published The Truth, which is dedicated to his own mother and father. “They say a parent’s­ love is unconditional,” he writes. “Let’s hope that’s still true after you read this book.”

    The Truth comes a decade after The Game, which tracked his journey from dateless no-hoper into master ‘‘pick-up artist’’. The multi-million seller is often maligned and mis­understood as a manual for dateless no-hopers looking for cheat sheets on how to attract the opposite sex, yet The Game is a powerful narrative of transformation which ends with Strauss giving away single life after finding love.

    This new book begins with Strauss cheating on his girlfriend — a different woman to the one he met at the end of The Game. What follows­ is a thorough exploration of the inside of his skull, and how his behaviour toward women has been shaped by his parents’ toxic relationship: a hypercritical, overprotective mother and an aloof, distant father who spent his whole life browbeaten by his wife. It’s a superb­ set-up to a long book, which quickly becomes a compulsive read powered by questions of how Strauss can escape his warped childhood and regain the trust of his scorned partner.

    The narrative covers four tumultuous years of Strauss’s life, through sex addiction therapy and a temporary reconciliation with his partner, followed by the supposed freedom of alternative relationships, such as an attempt to live with three sexual partners concurrently. He is aware of how this all sounds to anyone familiar with The Game: he encounters a man at sex addiction therapy who points out that “a book about learning how to meet women is destructive, and a book about learning how to stop meeting them would be good for the world. And ironic”.

    What sells the story is Strauss’s writing, which is never less than engaging, and frequently­ funny, heartfelt, or both. His observ­ations are astute and poignant: when attending a conference for polyamorists — people with more than one lover — and feeling awkward around a bunch of naked strangers, he notes: “Loneliness is holding in a joke because you have no one to share it with.”

    Like The Game, The Truth might be miscateg­orised under ‘‘self help’’ in bookstores, because the questions Strauss grapples with are universal: how to find love, maintain a relationship, and manage sexual attraction to others without jeopardising what you have built with your partner. Like his past few books, it is written in a first-person perspective, yet the lessons he learns during his journey can be understood and appreciated by many. This is a clever gambit­, and part of the reason that his writing appeals widely, as any attempt to directly instruct­ the reader would dampen its impact.

    Throughout the book, Rick Rubin — a famousl­y bearded record producer who has worked with many great musicians, from Jay-Z to Slayer — pops up as both wise counsel and exasperated onlooker to the author’s behaviour. Similarly, a therapist Strauss meets while being treated for sex addiction provides regular guidance and perspective, and occasionally she and Rubin appear in the same scene. All of the characters Strauss draws are three-dimensional and believable, including a few fellow sex addicts who have their own dysfunctional relationships and attitudes toward faithfulness.

    The two individuals who come under the most scrutiny are the author’s parents, however — hence the dubious dedication at the book’s beginning. Now 46, Strauss has been trying his whole life to please his strict, punishing mother, who frequently confided in her son how much she hated her husband. During therapy, he discovers that there’s a name for this sort of thing, where a mother is emotionally dependent on a child and has intimate discussions that should be had with a spouse: emotional incest.

    Learning that his mother wants to be in a relation­ship with him blows Strauss’s mind, naturally, but also helps him to understand why he’s been unable to live in a healthy, long-term relationship. The toxic environment in which he was raised coloured his romantic experiences in adolescence and adulthood. He became more dysfunctional after learning how to seduce­ women in his 30s.

    “My whole life, I’ve been fighting against love for my freedom,” he realises at about page 300. “No wonder I’ve never been married, engaged­, or even had a love that didn’t wane after the initial infatuation period.”

    Strauss is an incisive writer, and his struggle in these pages has to have been the toughest assignme­nt he’s ever taken on. It’s certainly his best and most important work to date. “For me, the best way to understand what actually transpired in any given situation is to write about it until the truth emerges,” he notes at one point. Writing this book can’t have been easy, yet the real genius of his work is the multiple layers at which he engages the reader.

    Just as The Game is often misunderstood as a straightforward seduction guide, The Truth could be misrepresented by those who seek to pursue alternative sexual relationships. As with the book he published a decade ago, though, the destination is more important than the journey, and where Strauss finds himself at the end is a much happier place than where he began.

    I also reviewed the below books for The Weekend Australian in 2015. They are listed in chronological order, with the publication date noted in brackets.