All posts tagged 2017

  • The Weekend Australian Magazine story: ‘Dying Wish: In-home palliative care nursing’, February 2017

    A feature story for The Weekend Australian Magazine, published in the February 11 2017 issue. Excerpt below.

    Dying Wish

    Few terminally ill Australians get to spend their final days at home. When it happens, it can be the greatest gift of love.

    The Weekend Australian Magazine story: 'Dying Wish: In-home Palliative Care Nursing' by Andrew McMillen, February 2017. Photo by Justine Walpole

    It begins with the lighting of a candle, the bright tone of a ­ringing bell, and a card plucked from a deck of Buddhist prayer cards then read aloud: “Now may every living thing, young or old, weak or strong, ­living near or far, known or unknown, living or departed, or yet unborn – may every living thing be full of bliss.”

    On this Monday morning in a northern suburb of Brisbane, six clinical nurses and support staff are gathered around a table inside a building known as Karuna House. Its walls are painted pale blue, its ceilings are high, and pinned to a corkboard are dozens of booklets gathered from funerals and memorial services. These are some of the organisation’s recently deceased clients, for the nature of Karuna’s work is to offer support to ­people who are terminally ill, providing in-home palliative care services to about 50 families at a time. ­Written in red on a whiteboard is the number four – the tally of clients who died the previous week in mid-November; the same as the week before.

    In a corner of the room beside an open ­window sits Camille Doyle, 40, who listens intently while making handwritten notes on a printed page that shows her clients’ names, addresses and current assessment: “stable”, “unstable”, “deteriorating”, or “terminal”. This fourth stage is followed by bereavement, which involves caring for those left behind. Today Camille will visit four homes; by now, she knows these people ­intimately and the routes to their houses so well that she doesn’t need a map.

    On a bushy block in Samford Valley, 25km north-west of Brisbane CBD, sits a large timber house owned by a married couple of 49 years. When Camille knocks on the door at 11.30am, she is greeted by Sandra Huelsmann, a 73-year-old grandmother who wears pearl earrings and a ­silver heart necklace. “Hello, Millie,” says Sandra, smiling. They hug, and Sandra welcomes the nurse into a home she has visited regularly for the past six months, an unusually long relationship for Karuna. The longer duration reflects the complex nature of this particular palliative situation.

    On an adjustable bed in a room towards the front of the house is Tony Huelsmann, a retired dancer, choreographer and dance instructor whose skills were once in high demand at schools throughout Melbourne and Brisbane. Sandra was one of his dance students. He was 30 when they met, seven years older than her, and it was love at first sight.

    Born in Germany, Tony has spent much of his life in Australia. Now 80, he is dying from complications associated with several internal and ­external cancers, including a rash of angry red squamous cell carcinomas that have colonised the skin of his swollen upper thighs. These painful sores require daily dressings, performed by a personal care worker, while Karuna’s rotating ­roster of nurses help with symptom management, bed-baths, toileting and bedding changes, as well as emotional support for both husband and wife.

    Since May, Tony’s world-spanning life has been confined more or less to these four walls while Sandra cares for his every need. At night, she snatches sleep where possible. It is their wish for Tony to die at home and they are both determined to see this wish fulfilled.

    To read the full story, visit The Australian. Above photo credit: Justine Walpole.

  • The Saturday Paper story: ‘Schlock Therapy: The Clown Doctors of Lady Cilento’, February 2017

    A feature story for The Saturday Paper, published in the February 11 2017 issue. Excerpt below.

    Schlock Therapy

    In hospitals throughout Australia a dedicated troupe of clown doctors dispenses therapeutic comic relief.

    The Saturday Paper story by Andrew McMillen: 'Schlock Therapy: The Clown Doctors of Lady Cilento', February 2017. Photo by Jodie Richter

    In a quiet and unassuming corner of Lady Cilento Children’s Hospital in South Brisbane, a transformation is taking place. Inside a nondescript room are two women who seek to make people laugh so that they might forget their surroundings, if only for a few moments.

    Standing before a mirror in a small room, Jenny Wynter applies eyeliner to complement the bright red circles painted onto her cheeks, before picking up a watermelon-adorned ukulele to tweak its tuning. Louise Brehmer secures a series of rainbow-coloured hair ties into her pigtailed locks, dons a purple bucket hat, and fills the pockets of her white lab coat with an array of props. The final touch? Bright red noses, naturally, for a clown can feel only naked without one.

    Affixed to the lockers that occupy the back wall are photographs of six clown doctors, who work in pairs to prowl the bright-green building while spreading mirth. For a few hours at a time, these women dress up to stand out. They seek to become the lowest-status person in every room they enter; they aim for nothing more than to become the butt of their own jokes. When the red noses are on, they’re professional goofs. They act as outrageously as possible to make everyone around them feel better about themselves. “There’s not many jobs where walking down a corridor elicits a smile,” says Brehmer of their eye-catching costumes. “We’re here for the entire hospital, to bring an element of lightness to a serious place.”

    Brehmer has been doing this work for 16 years, and considers it a valuable addition to her career as a freelance actor. “I’m still learning,” she says. “Some days, I have no idea what to do in a situation.” Wynter is a comparative newbie: her background is in stand-up comedy, and she has been a qualified clown doctor since June 2016, having completed her “clownternship” after making 50 appearances in the role. “It’s so much about reading the room, and being willing to change at any point,” she says. “You’ve got to show up with an open heart.”

    On leaving the change room, they switch from friendly colleagues to partners in comedic crime. In the hallway outside, near an immunisation centre, they embrace and address each other by their stage names for the first time today. “Hello, Wobble!” says Wynter, who is now known as Doctor Angelina Jolly.

    As soon as they round the corner, they join the general population of the public hospital’s bustling second floor, and the improvised routine begins in earnest. Within the first five minutes of finding an audience, Doctor Jolly blows bubbles and distributes squares of toilet paper to some bemused boys, Doctor Wobble uses her stethoscope to check the heart rate of a visitor’s stuffed panda, and the pair of them launch into an enthusiastic rendition of “Twinkle, Twinkle, Little Star”, accompanied by Doctor Jolly’s ukulele. “A lot of the day is just spent cracking each other up,” says Wobble, while they ride an elevator up to the sixth floor.

    To read the full story, visit The Saturday Paper. Above photo credit: Jodie Richter.

  • Backchannel story: ‘The Troll Taunter: Emily Temple-Wood’, February 2017

    A feature story for Backchannel. Excerpt below.

    The Troll Taunter

    A young Wikipedia editor withstood a decade of online abuse. Now she’s fighting back — on Wikipedia itself.

    Backchannel story: 'The Troll Taunter: Emily Temple-Wood' by Andrew McMillen, February 2017. Illustration by Laurent Hrybyk

    The “fuck you” project crystallized one Friday night last year. As Emily Temple-Wood video-chatted with friends, an email pinged in her inbox:

    “There are alternate realities where I raped you and got away with it,” it read. “In those realities it’s legal for me to rape you as long as I want and as hard as I want. I am dead serious.”

    The note came from someone with a history of harassing the 22-year-old medical student. This man hates women, Temple-Wood thought to herself. Then she had another thought. What do misogynists hate more than successful women?

    Nothing.

    She’d been receiving vicious emails for a decade. Sometimes she sought solace by commiserating with friends, or by stomping off to do something else, or occasionally—after the cruelest messages—by lying on her bed and crying. Temple-Wood became a frequent target of abuse merely because she is the rare female Wikipedia editor who has been active on the site for years. She manages to let much of the harassment slide off her. But many women eventually find the bullying to be too much, and leave the site.

    Across the internet, trolls disproportionately target women and members of other underrepresented groups. On Twitter, Reddit, YouTube, Wikipedia, and other open platforms, victims of harassment are forced to make a difficult choice—go silent and preserve their mental health, or try to ignore the abuse and continue expressing themselves openly online. As the wounds deepen, that latter choice becomes harder and harder to justify.

    When people get forced off the web, their voices disappear from the internet’s public squares. The ideas and memes that dominate skew even further toward a white male perspective. The web becomes less interesting, less representative, less valuable. We all lose.

    But on that Friday night, Temple-Wood had an idea. For every harassing email, death threat, or request for nude photos that she received, she resolved to create a Wikipedia biography on a notable woman scientist who was previously unknown to the free online encyclopedia. She thought of it as a giant “fuck you” to the anonymous idiots seeking to silence her.

    To read the full story, visit Backchannel. Above illustration by Laurent Hrybyk.