All posts tagged cancer

  • The Weekend Australian Magazine story: ‘Dying Wish: In-home palliative care nursing’, February 2017

    A feature story for The Weekend Australian Magazine, published in the February 11 2017 issue. Excerpt below.

    Dying Wish

    Few terminally ill Australians get to spend their final days at home. When it happens, it can be the greatest gift of love.

    The Weekend Australian Magazine story: 'Dying Wish: In-home Palliative Care Nursing' by Andrew McMillen, February 2017. Photo by Justine Walpole

    It begins with the lighting of a candle, the bright tone of a ­ringing bell, and a card plucked from a deck of Buddhist prayer cards then read aloud: “Now may every living thing, young or old, weak or strong, ­living near or far, known or unknown, living or departed, or yet unborn – may every living thing be full of bliss.”

    On this Monday morning in a northern suburb of Brisbane, six clinical nurses and support staff are gathered around a table inside a building known as Karuna House. Its walls are painted pale blue, its ceilings are high, and pinned to a corkboard are dozens of booklets gathered from funerals and memorial services. These are some of the organisation’s recently deceased clients, for the nature of Karuna’s work is to offer support to ­people who are terminally ill, providing in-home palliative care services to about 50 families at a time. ­Written in red on a whiteboard is the number four – the tally of clients who died the previous week in mid-November; the same as the week before.

    In a corner of the room beside an open ­window sits Camille Doyle, 40, who listens intently while making handwritten notes on a printed page that shows her clients’ names, addresses and current assessment: “stable”, “unstable”, “deteriorating”, or “terminal”. This fourth stage is followed by bereavement, which involves caring for those left behind. Today Camille will visit four homes; by now, she knows these people ­intimately and the routes to their houses so well that she doesn’t need a map.

    On a bushy block in Samford Valley, 25km north-west of Brisbane CBD, sits a large timber house owned by a married couple of 49 years. When Camille knocks on the door at 11.30am, she is greeted by Sandra Huelsmann, a 73-year-old grandmother who wears pearl earrings and a ­silver heart necklace. “Hello, Millie,” says Sandra, smiling. They hug, and Sandra welcomes the nurse into a home she has visited regularly for the past six months, an unusually long relationship for Karuna. The longer duration reflects the complex nature of this particular palliative situation.

    On an adjustable bed in a room towards the front of the house is Tony Huelsmann, a retired dancer, choreographer and dance instructor whose skills were once in high demand at schools throughout Melbourne and Brisbane. Sandra was one of his dance students. He was 30 when they met, seven years older than her, and it was love at first sight.

    Born in Germany, Tony has spent much of his life in Australia. Now 80, he is dying from complications associated with several internal and ­external cancers, including a rash of angry red squamous cell carcinomas that have colonised the skin of his swollen upper thighs. These painful sores require daily dressings, performed by a personal care worker, while Karuna’s rotating ­roster of nurses help with symptom management, bed-baths, toileting and bedding changes, as well as emotional support for both husband and wife.

    Since May, Tony’s world-spanning life has been confined more or less to these four walls while Sandra cares for his every need. At night, she snatches sleep where possible. It is their wish for Tony to die at home and they are both determined to see this wish fulfilled.

    To read the full story, visit The Australian. Above photo credit: Justine Walpole.

  • The Weekend Australian Magazine story: ‘Saving Face: Brenton Cadd’, October 2016

    A feature story for The Weekend Australian Magazine, published in the October 22-23 issue. Excerpt below.

    Saving Face

    Need a new nose, eye or ear? Meet the ‘spare parts’ man changing lives

    The Weekend Australian Magazine story: 'Saving Face: Brenton Cadd' by Andrew McMillen, October 2016. Photo by Julian Kingma

    In January 1970, a young man joined the facial prosthetics department at the Royal Melbourne Hospital. As an apprentice ­dental technician, Brenton Cadd, 17, began learning on the job how to fix people with ­disfigurement so that they might be freed of shame or embarrassment. His mentor in the four-man department was Cliff Wellington, a ­signwriter by trade who’d served in the army as a dental technician. He had a painter’s eye for detail, and in 1945 he’d transitioned into the nascent field of facial prosthetics. Returned servicemen missing ears, eyes and noses were in dire need of some form of camouflage to help them blend into a crowd. Through a peculiar mix of technical ability and artistry, Wellington was an Australian pioneer who passed onto his young charge his aptitude for working on small, intimate canvases.

    Today, a framed photo of a smiling Wellington sits prominently on a shelf near the door that leads into a workshop managed by Brenton Cadd. For 46 years he has devoted his life to a single workplace and this single task. Through the use of silicon, empathy, paint, patience, titanium, plaster and good humour, he is a leader in a highly ­specialised field that employs only a handful of people across the country. He is a quiet achiever whose work takes time, and whose time at the Royal Melbourne Hospital is much nearer its end than its beginning. What will happen after he sees his last patient is unclear, for what he does for them is nothing less than life-changing.

    You could pass Cadd in a crowd without a ­second glance. If you are a long-time fan of the Hawthorn Football Club, you are likely to have done just that at a home game. He does not invest too much time in his appearance and wears polo shirts with a breast pocket in which he keeps a small notebook he calls “the brain” . It helps him remember his many pressing tasks. He is bearded, with kindly blue eyes that have looked upon thousands of patients who, whether they are able to articulate it or not, are relying on him to co-create a new identity for lives riven by the trauma of looking different from everyone else.

    Here he is, on a Wednesday afternoon in mid-August, looking squarely at a patient whose left eye was removed due to cancer. Geelong retiree Pamela Flatt, 68, sits on a high-backed ­dentist’s chair while her husband and daughter perch nearby. Flatt’s left eye socket is now covered by a skin graft and her disguise is a pair of thick-framed spectacles, with the left eye coloured solid white. In the near future she will no longer have a use for these glasses as a transformation led by Cadd is slowly taking place. Around the edge of her eye socket, screwed into bone, are three abutments made of pure titanium. Soon, a silicon-based ­prosthesis will be clipped into place with magnets.

    Flatt is a grandmother of six and a great-grandmother of three. Since her nine-hour operation to remove the cancer over a year ago, she has hardly locked herself away from the public eye: in fact, she has just returned from a trip to Thailand with a girlfriend, where she rode on an elephant. “Why not?” she reasons. “Life’s too short.”

    Despite her positive outlook, the metal implants have drawn attention. “Kids are looking at me like I’m an alien or something: ‘That lady’s got funny things in her head!’ ” she says. “They weren’t bothered until I had those things put in.” Nerve damage means that she can’t feel the ­titanium plate behind her skin, nor Cadd’s hands as he uses a small torque screwdriver to tighten the abutments. He then covers her eye socket with two layers of a rubber-like material for making a cast and lets it set on her face for a couple of minutes. Just like having a wax job, she quips.

    While she sits still and silent, Flatt’s daughter steps in to take a snapshot for posterity. “Someone usually takes a photo,” Cadd says, smiling. With care, he removes the cast, which will later be used for a custom-made mould that fits the exact contours of her eye socket. He excuses himself to retrieve from next door a beautifully hand-crafted eye prosthesis for a younger woman, complete with thick lashes, a realistic brown eye and dark eyeliner. It’s a work of art. “That’s what we’re aiming for,” Cadd says. “But we’re still about five visits off something like that.”

    The appointment concludes after an hour, but before Flatt heads back to Geelong she turns to Cadd and jokes: “I can’t be a one-eyed Cats ­supporter then, can I?”

    To read the full story, visit The Australian. Above photo credit: Julian Kingma.

  • Matters Of Substance story: ‘The Snowball and the Avalanche: Medical Cannabis in Australia’, July 2016

    A feature story for the May 2016 issue of Matters Of Substance, the quarterly magazine published by the New Zealand Drug Foundation. Excerpt below.

    The Snowball and the Avalanche: Medical Cannabis in Australia

    Stories of personal suffering, where debilitating symptoms are eventually eased by medical cannabis, are appearing ever more frequently in the news. Andrew McMillen argues it is these sorts of stories that have engendered compassion in Australia, eroding the stigma around medical cannabis use and paving the way for science and more evidence- based legislation.

    Matters Of Substance story: 'The Snowball and the Avalanche: Medical Cannabis in Australia' by Andrew McMillen, July 2016

    The story of medical cannabis in Australia is much the same as in other countries around the world that have tiptoed this path before us. Here across the ditch, as in New Zealand, the United States and many other advanced economies, it is a situation where two strange bedfellows have been pitted against one another: stigma and science. For many years, because of their preconceived attitudes, staunch opponents of illicit drug use have remained wilfully blind to the benefits of medical cannabis experienced by sick people. Here, as elsewhere, this is not a campaign for the impatient. Change is slow, often painfully so, as it relies on a willingness for opponents to reconsider their positions in light of compelling evidence.

    In the last few years, though, the situation has appeared to change rather quickly and dramatically. The appropriate image is that of a single snowball rolling down a hill, gradually gaining mass and momentum until it forms an unstoppable avalanche. To this end, a raft of touching personal stories have been told in the national media. As a result, many state and federal politicians have sensed a shift in public sympathy towards sick people who are attempting to access medical cannabis without further complicating their lives by crossing paths with the criminal justice system.

    Support for plant-based medicine has gone mainstream, as evidenced by a July 2014 ReachTel poll that found that almost two-thirds of Australians believe cannabis should be made legal for medical purposes. It is telling that compassion is the driving emotion here, rather than fear – long-time advocates might well wish they had cottoned on to this tactic earlier.

    These personal stories don’t come more dramatic and heart-wrenching than Dan Haslam’s. In fact, his journey to accepting and using medical cannabis has become emblematic of changing attitudes to the drug across Australia. Dan was the snowball, and his descent down the hill began when he was diagnosed with terminal bowel cancer in February 2010 while living in the regional New South Wales (NSW) city of Tamworth. There, the then 20-year-old eventually discovered that the only treatment that soothed his nausea and stimulated his appetite while undergoing chemotherapy was cannabis. His parents wished there was another way. The fact that his father was head of the Tamworth Police Drug Squad made this desperate decision even more ethically and legally tortured than usual.

    To read the full story, visit Matters Of Substance.

    Further reading: my book Talking Smack: Honest Conversations About Drugs, published by University of Queensland Press in 2014.

  • Brisbane Times story: ‘From dreadlocks to shaved for World’s Greatest Shave’, March 2012

    A story for Brisbane Times which was also filmed and edited into a two-minute video. Click the below image to view the video, and read the article text underneath.

    From dreadlocks to shaved

    Andrew McMillen has his dreadlocks shaved off for the Leukaemia Foundation's World's Greatest Shave
    Click to play video

    According to Scottish comedian Billy Connolly, “a primary-coloured beard is a perfect arsehole-detector”. I’ve long felt the same way about my dreadlocks, which I’ve had in place since September 2004.

    Connolly referred to the tendency of dreary folk – or “beige people”, as he would call them – to reveal themselves in the presence of someone whose unusual appearance upsets them. So too with my hairstyle, which elicits a range of responses – verbal or otherwise – when I meet people for the first time.

    At music festivals, I’m frequently assumed to be holding pot or other treats by both punters and police. When shopping, staff tend to drop their manner a few notches and engage with me in terms of “dude” and “man” far more often than “sir”. At election time, LNP and ALP hawkers don’t bother pressing fliers into my hands – it’s assumed that the Greens are the political party for me. In the street, charity peddlers smile and see me as an easy mark; someone naturally sympathetic to whichever planet-saving scheme they’re pushing.

    It’s endlessly fascinating to me how much people can read into a hairstyle. I’ve gotten far more enjoyment from observing how people react to me than from the dreadlocks themselves, which I chose purely for vanity: I liked how they looked on some of my favourite musicians, most notably the singer from Gold Coast hard rock act Sunk Loto, so I decided to try it on for myself.

    I’ve never regretted the decision, though seven and a half years of growth – coupled with the gradual thinning and breaking of the locks on top of my head – meant that it was always going to be a finite style.

    For years, my plan had been to support the Leukaemia Foundation and their World’s Greatest Shave initiative by turning a fairly drastic measure into a public spectacle. Handily, one that would encourage those around me to donate money and support a worthy cause.

    Since 1998, the annual shave has been undertaken by over one million Australians, who’ve raised over $120 million for the Foundation. Donations support families when they need it most, by providing leukaemia, lymphoma and myeloma patients – there are over 11,500 new cases across the country each year – with a free home-away-from-home near hospital during their treatment.

    The Foundation also funnels millions into blood cancer research. Although survival rates are improving, blood cancers remain the second biggest cause of cancer death in Australia.

    In light of these life-and-death scenarios that occur with troubling frequency – today, 31 Australians will be given the devastating news that they have one of the above three blood disorders – shaving my head to raise awareness and money for the cause always seemed a very pedestrian decision.

    I’m cancer-free and perfectly healthy – touch wood, I’ll remain that way forevermore – yet the concept of losing my ridiculous hair suddenly became an asset for leukaemia sufferers and their families to benefit from. Most of the people in my life at the moment have only ever known me with dreadlocks: I moved to Brisbane to study in 2006, after graduating from Bundaberg State High School the year before.

    I knew that going from full-head-of-hair to bare would spur the people around me to donate. I set my fundraising goal at $1,000. This seemed a reasonable amount. Thanks to the generosity of my friends and family, I reached this goal three weeks after starting the campaign. At the time of writing, the total climbs toward $1,500, which is astonishing to me.

    The shave itself took place earlier this week at a Price Attack salon in Indooroopilly. Leukaemia Foundation’s Beverley Mirolo was there to make the first cut, followed by a few of my friends. My girlfriend was particularly happy to shave off my sideburns, which had grown unruly after months of neglect. I watched in the mirror as a new me emerged. Suddenly, I looked vastly younger than my 24 years. Vastly different, too, though not as alien-like as I’d expected.

    I love how hair can become a social object; a topic of conversation, a reason to interact with another human. Those with dreadlocks know this better than most. It’d surprise you just how many people are curious enough to stop us in the street and ask to touch our hair. (Just as common: “is that your real hair?”)

    This is what I’ll miss most about my dreadlocks: looking slightly different from other folks, and watching them adjust their interactions to suit their idea of what my hairstyle represents. But for now, I’m embracing the baldness: tomorrow, I’m taking it a few millimetres further and getting my first ever ‘open blade’ shave, which will reduce my head hair down to nothingness. Wish me luck.

    Andrew McMillen is a Brisbane-based freelance journalist. You can follow him on Twitter at @NiteShok. You can donate to his World’s Greatest Shave fundraising here.

    Above photos taken by Scott Beveridge. More photos from the shave can be found by viewing the story on Brisbane Times here.

    My friend Mark Lobo took some before-and-after photos, too.